• Welcome!

    18:30 Welcome Drinks Lift Bar & Grill
    19:00 Welcome Dinner Lift Bar & Grill
  • Sheraton Vancouver Wall Centre

    8:30 Welcome and update membership Demetrius Maraganore
    8:45 The LONG-PD Study: Longitudinal clinical and genetic studies of Parkinson’s disease Demetrius Maraganore
    9:45 Break
    10:15 GEoPD RVCD sequencing and genotyping project Matthew Farrer
    11:15 COURAGE PD
    12:00 Lunch
    13:00 Data blitz epidemiology/clinical (7 speakers) Moderator: Jan Aasly
    14:45 Break
    15:15 Data blitz genetics/neuroscience (13 speakers) Moderator: Rejko Kruger
    17:30 Adjourn
    18:00 Steering Committee Meeting & Dinner Steering committee members only
  • University of British Columbia

    7:45 Bus departs from the Sharaton Hotel to University of British Columbia
    Hot Topics
    Moderator: Christine Klein
    8:30 Epidemiology Beate Ritz
    9:10 Genetics Christine Klein
    9:50 Functional studies Rejko Kruger
    10:30 Break & Posters
    11:30 Unmet Needs/New Proposals/Suggestions
    12:30 Lunch
    Alpha-synuclein, cognition and therapeutic possibilities
    Moderator: Matthew Farrer
    13:30 SNCA and cognition in PD, PD-MCI, PDD, DLB & AD Matthew Farrer
    14:15 PD-MCI Consortium Gert Geurtsen – Amsterdam
    15:00 Web-based cognitive testing in PD Adrian Owen – University of Western Ontario
    15:45 Break
    16:00 Alpha-synuclein transmission in vivo Eliezer Masliah – UCSD
    16:45 Alpha-synuclein lowering as a therapeutic approach Tracy Cole – Isis/Biogen
    17:30 Wrap-up Demetrius Maraganore
    18:00 Adjourn
    18:30 Reception Museum of Anthropology
    19:00 GEOPD Gala Dinner Museum of Anthropology
  • Satellite Meeting: LONG-PD Study Investigators Meeting

    8:30-12:00

    Implementation and operational details of the LONG-PD study
    LONG-PD study investigators only

    1. Detailed review of the final REDCap form
    2. Designate required or optional forms or fields
    3. Develop a data dictionary to standardize coding of variables
    4. Designate biorepositories for DNA storage and genotyping
    5. Discuss MTA and IRB requirements
    6. Discuss enrollment targets and annual follow up requirements
    7. Discuss Best Practices for data transfer and cleaning
    8. Timeline to complete administrative requirements
    9. Timeline to start enrollment and follow up assessments
    10. Timeline for first genotyping and analyses
    11. Other discussion